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Patient Reported Outcomes Module

Quality & Practice

 

 

Patient-Reported Outcome Measures are increasingly being utilized to evaluate success of clinical care. Many physiatrist stakeholders find benefit in capturing this patient perspective to best provide a full picture of rehabilitation care. Recognizing this, AAPM&R has made a commitment to facilitating capture of this patient reported data through its registry platform. AAPM&R’s Registry will provide data that is actionable to physiatrists in their journey to improve the lives of their patients. Success of the Registry will come from harnessing traditional Electronic Medical Record data with Patient Reported Outcomes (PRO) data.

PRO Assessments are a set of questions that are filled out directly by a patient or a proxy to inform both clinicians and the patients themselves of pain, quality-of-life, goals and additional data points. As patients report on these data points over time, clinicians can assess how they are improving the health of patients overall. AAPM&R’s Registry, governed by an Academy-led Steering Committee, is using PROMIS®-29 as the core PRO for the Registry.

PROMIS®-29 is a global tool that can be used across clinical diagnoses and settings. The survey is comprised of 29 questions over 8 different domains:

  • Physical Function
  • Anxiety
  • Depression
  • Fatigue
  • Sleep Disturbance
  • Ability to Participate in Social Roles and Activities
  • Pain Interference
  • Pain Intensity
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Capturing Patient Reported Data


AAPM&R’s Registry is currently collecting data in the clinical areas of Low Back Pain and Ischemic Stroke and will expand into other clinical areas. Patient Reported Outcome surveys are sent to patients that meet specific inclusion/exclusion criteria.

Ischemic Stroke

Inclusion:

  • New patients in IRF setting (place of service code 61 or 21 only)
  • Age 18 and over
  • Diagnosis of Ischemic Stroke

Exclusion:

  • Length of stay < 4 calendar days
  • Patient discharged to a place of service not an IRF

Low Back Pain

Inclusion:

  • Complaint of low-back pain and/or leg pain
  • Age 18 or older
  • Back pain has existed for less than 6 months

Exclusion:

  • Lumbar prior surgeries
  • Actively being treated for cancer diagnosis
  • Actively being treated for infection
  • Active Worker's Compensation case, including motor vehicle accident 
A patient can receive the survey directly via email or they can fill it out in a clinician’s office. Before answering the PROMIS®-29 questions, the survey takes the patient through a number of demographic and characteristic questions that will help the Registry supplement data not typically found in an EMR. After completing their baseline survey, patients will receive follow-up surveys at specific intervals via email.

Ischemic Stroke Surveys

  • The first survey (baseline) is done at patient's discharge
  • A follow-up survey is sent to the patient 30 days after discharge

Low Back Pain Surveys

  • The first survey (baseline) is done before or during the patient's first appointment
  • Follow up surveys are sent to the patient at:
    • 6 weeks
    • 3 months
    • 6 months
    • 12 months